It’s Snowing!

It’s Snowing!

s 4:30; it’s been snowing for a few hours now. The quietude of the outdoors is afoot as the snowflakes are very small. I remember years ago when we used to ski at Killington, around this time we’d be in the lodge at the top of the mountain getting ready for the last run down. It was cool to sit there and have a hot chocolate while we waited for everyone else to clear out. Continue reading It’s Snowing!

Our Family Fauci Story

Our Family Fauci Story

After a few more days, mom and I were scheduled to meet with the neurology team to discuss whether he would ever come out of this coma and what our best next steps should be in caring for him (i.e., “do we bring him home?”, “does he need surgery?”, “what is his overall prognosis?”). From his team at the Brigham, we learned that multi-organ failure was a symptom of Wegener’s and that there were less than 500 people in the United States who had been diagnosed with it. It was referred to as an “orphan illness.” Continue reading Our Family Fauci Story